Comments on: Boy Diagnosed With Rare Chest Tumor http://health.blogs.foxnews.com/2008/04/10/boy-diagnosed-with-rare-chest-tumor/ The latest from the FOX News Health team. Tue, 01 Dec 2009 18:12:03 +0000 http://wordpress.com/ hourly 1 By: keith west http://health.blogs.foxnews.com/2008/04/10/boy-diagnosed-with-rare-chest-tumor/#comment-6718 keith west Sat, 03 May 2008 09:02:59 +0000 http://foxnewshealth.wordpress.com/?p=233#comment-6718 Hi there I ran across your site while searching for celebrity baby news and your post regarding gnosed With Rare Chest Tumor « FOX News Health Blog « FOXNews.com caught my attention .. Good info thanks Saturday Hi there I ran across your site while searching for celebrity baby news and your post regarding gnosed With Rare Chest Tumor « FOX News Health Blog « FOXNews.com caught my attention .. Good info thanks Saturday

]]> By: Jennifer Reinartz http://health.blogs.foxnews.com/2008/04/10/boy-diagnosed-with-rare-chest-tumor/#comment-4680 Jennifer Reinartz Fri, 11 Apr 2008 01:48:33 +0000 http://foxnewshealth.wordpress.com/?p=233#comment-4680 Our daughter has OMS and her doctor is DR. Michael Pranzatelli. (omsusa.org) is a way to contact him. I strongly urge you to seek a specialist to get the best care A.S.A.P. Our daughter has OMS and her doctor is DR. Michael Pranzatelli. (omsusa.org) is a way to contact him. I strongly urge you to seek a specialist to get the best care A.S.A.P.

]]> By: Auntie Coosa http://health.blogs.foxnews.com/2008/04/10/boy-diagnosed-with-rare-chest-tumor/#comment-4671 Auntie Coosa Thu, 10 Apr 2008 19:32:17 +0000 http://foxnewshealth.wordpress.com/?p=233#comment-4671 Poor baby, but thankfully he's had surgery and the doctors know how to treat him. I wonder if the twin is identical or fraternal and if there's any way the twin's blood or DNA to help. Thankfully, this child lives in the USofA which doesn't have "universal" (which means not always available or adequate) health care. This case would have turned out very differently had the child been put on a waiting list for the MRI (which would have happened in a Country with "universal" health care). Prayers for the little tyke for a healthy recovery. Poor baby, but thankfully he’s had surgery and the doctors know how to treat him. I wonder if the twin is identical or fraternal and if there’s any way the twin’s blood or DNA to help.

Thankfully, this child lives in the USofA which doesn’t have “universal” (which means not always available or adequate) health care. This case would have turned out very differently had the child been put on a waiting list for the MRI (which would have happened in a Country with “universal” health care).

Prayers for the little tyke for a healthy recovery.

]]> By: Jeff Reinartz http://health.blogs.foxnews.com/2008/04/10/boy-diagnosed-with-rare-chest-tumor/#comment-4669 Jeff Reinartz Thu, 10 Apr 2008 18:05:26 +0000 http://foxnewshealth.wordpress.com/?p=233#comment-4669 My daughter developed this when she was about 18 months old. She had an adrenal gland removed, and unfortunately her antibodies continued attacking her brain. St. Mary's Hospital in Rochester, MN, part of the Mayo system, misdiagnosed her, and didn't seem to know anything about OMS. Fortuantely, we found Dr. Michael Pranzatelli, the leading researcher on OMS in the US, in Springfield, IL. He put our daughter on the drug treatment program that eventually got her back up and walking. She is in 2nd grade now, and has some speech delay, cognitive delay and behavior issues. She has grown like a weed and has come a lot farther than many thought when she was diagnosed as severe. So far she has had no relapse. Dr. Pranzatelli's website is omsusa.org. My daughter developed this when she was about 18 months old. She had an adrenal gland removed, and unfortunately her antibodies continued attacking her brain. St. Mary’s Hospital in Rochester, MN, part of the Mayo system, misdiagnosed her, and didn’t seem to know anything about OMS. Fortuantely, we found Dr. Michael Pranzatelli, the leading researcher on OMS in the US, in Springfield, IL. He put our daughter on the drug treatment program that eventually got her back up and walking. She is in 2nd grade now, and has some speech delay, cognitive delay and behavior issues. She has grown like a weed and has come a lot farther than many thought when she was diagnosed as severe. So far she has had no relapse. Dr. Pranzatelli’s website is omsusa.org.

]]> By: sharon http://health.blogs.foxnews.com/2008/04/10/boy-diagnosed-with-rare-chest-tumor/#comment-4668 sharon Thu, 10 Apr 2008 17:55:13 +0000 http://foxnewshealth.wordpress.com/?p=233#comment-4668 My grandson has the same thing. He was misdiognosed when he was 15 or 16 months old. They eventually found out that not only was it OMS but he also has Neuroblastoma. He is 3 now, and going through speech lessons, and IVIG medication so subside the symptoms. Its a scary thing to see a child go through something like that. I commend my daughter in law and son for dealing with this on their own. Little Conner was so miserable, crying and screaming all the time. Now its still difficult, but one day at a time. My grandson has the same thing. He was misdiognosed when he was 15 or 16 months old. They eventually found out that not only was it OMS but he also has Neuroblastoma. He is 3 now, and going through speech lessons, and IVIG medication so subside the symptoms. Its a scary thing to see a child go through something like that. I commend my daughter in law and son for dealing with this on their own. Little Conner was so miserable, crying and screaming all the time. Now its still difficult, but one day at a time.

]]>