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Posts Tagged ‘emergency’

Children With Medical Needs

Wednesday, August 12th, 2009

111_cerbasi_blogParents of every background, religion, and nationality have one common wish for their children: to remain healthy throughout their lives. Unfortunately, many parents are forced to face their worst fears when a child is diagnosed with a medical condition that requires ongoing treatment or specific care. This could include seizure disorders, diabetes, or life-threatening allergies. It could also include a developmental disability such as autism, in which case your child may not be able to communicate his pain or discomfort. Regardless of the condition, there are certain steps parents of children with specific medical needs should take to ensure proper care and immediate action.

Fill out school and activity medical forms in detail.
You may think these forms get stored away, never to be referenced again. School nurses, educators, and instructors will read these forms to make themselves aware of your child’s specific conditions and learn about their responsibilities regarding your child’s care. Ask to sit down with this person so you can go over the form together in case they have any questions beyond what is printed. These forms are also crucial for substitute nurses or teachers, in case your child requires care while under their supervision.

Provide your child with proper identification.
Some conditions could render your child without the ability to communicate to emergency medical responders. Consider various types of identification, such as necklaces, bracelets, or shoe tags that list the condition, doctors’ or parents’ phone numbers, or medication. Consider which one best fits your child’s needs. If your child will be spending a lot of time swimming at camp, the shoe tag may not be best as she won’t have her shoes with her most of the time. Younger children may fare better with a bracelet over a necklace as the necklace may be uncomfortable. Ask your child’s pediatrician about pertinent information to be printed on the identification tag.

Train everyone who works with your child.
This means bus drivers, camp counselors, coaches, scout leaders, babysitters, and religious education teachers. Explain to your child that you are doing this in order to keep her safe, not to parade her special needs. Knowing that everyone is prepared to help her should make her feel safe but keep in mind it could make her feel like she is in an unwanted spotlight. Consider speaking with her close friends about her needs so they can be aware of warning signs she is in danger. Be sensitive to your child’s feelings about her condition but assure her you are acting in her best interest. Have these conversations discreetly and remind caregivers of their commitment to confidentiality. Caregivers will have access to only the information that will keep your child safe.

Have a family emergency plan.
Some children have medical conditions that require a call for emergency medical attention. Create a plan for this occurrence and practice with your family frequently. Make sure everyone has a job in case your child requires immediate medical attention. Jobs could include opening the front door for emergency responders, calling a neighbor or other adult family member, or gathering all the siblings in another room. Seeing a family member in need of emergency care can be frightening but having a plan will reduce everyone’s anxiety.

Ask your child’s pediatrician or specialist for important tips to share with those working with your child. He may have brochures to share or other printed materials to provide your child’s caregivers and educators.

Communicate with your child about his condition but don’t make it the only topic of conversation. It is important for your child to be educated about his needs but it should never define him. The most important thing for you to remember is he is a child first. Never address him as “diabetic” or “autistic.” He is a child with diabetes or a child with autism. Addressing him this way is a sign of respect for him as an individual.

Having a child with ongoing medical needs can be frightening and stressful for a parent. Being prepared and informed will make you empowered and able to care for your child. Educating people who interact with your child will make you secure about her care in your absence and, for any parent, that feeling is priceless.

Jennifer Cerbasi teaches at a public school for children on the autism spectrum in New Jersey. As a coordinator of Applied Behavioral Analysis programs in the home, she works with parents to create and implement behavioral plans for their children in an environment that fosters both academic and social growth. In addition to her work both in the classroom and at home, she is also a member of the National Association of Special Education Teachers and the Association for Supervision and Curriculum Development.

Disaster Preparedness

Monday, September 1st, 2008

As the Gulf Coast braced itself on Labor Day in preparation for Hurricane Gustav to hit Louisiana, Fox News anchors were filing compelling reports from New Orleans. Trace Gallagher made the point that after what happened with Hurricane Katrina, people were well advised to follow evacuation orders and get in their cars and go.

But as more than 2 million people left New Orleans and vicinity, it was speculation that this new hurricane was going to cause significant damage - before the fact.  It was also not surprising that despite all the buildup, the storm itself was weakening as it reached land. And as I’ve written about in my 2005 book, False Alarm; the Truth About the Epidemic of Fear, excess worry about potential dangers can cause harm even if the disasters never occur.  For one thing, people rushing to safety can get injured on the way. For another, too much attention and concern about worst case scenarios can create a boy-who-cried-wolf mindset that creates a slower response the next time around. (In fact, the inadequate response to Hurricane Katrina was due, at least in part, to previously overhyped hurricane warnings that caused people not to take the Katrina warnings seriously enough).

So how should we prepare for potential disasters if our system of risk assessment and the media reports that inform them are often premature or inaccurate? Though it is often better to overreact rather then underreact, it is at least as important to stay calm, and to have a generic plan for disaster response that is useful for all disasters.

Here are some useful tips:

*       Don’t overreact. If you make calm rational decisions you are far less likely to be hurt and your response is far more likely to be effective.
*       It is always wise to keep a 3-month supply of your medications on hand. The majority of our medications come from other countries and these supplies might be interrupted during a national emergency.
*       Keeping a several weeks-worth emergency supply of food and water is also wise, but it is not necessary to prepare your stash with an exact kind of disaster in mind. An electrical blackout is far more likely than a hurricane or earthquake, but you can prepare similarly for both.
*       Hospitals have limited surge capacities for disasters. Medical care should be planned without assuming quick access to emergency services.
*       Have a personal evacuation and communication plan in place for you and your close relatives. How will you reach people if cell phones aren’t working?  Where will you go if there is an advisory to leave your home?

Dr. Marc Siegel is an internist and associate professor of medicine at the NYU School of Medicine. He is a FOX News Medical Contributor and writes a health column for LA Times, where he examines TV and movies for medical accuracy. Dr. Siegel is the author of “False Alarm: the Truth About the Epidemic of Fear” and “Bird Flu: Everything You Need to Know About the Next Pandemic”. Read more at www.doctorsiegel.com

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